Announcement of Merger
We are proud to announce that the World Fellowship for Schizophrenia and Allied Disorders (WFSAD) has now merged with the World Federation for Mental Health.
In merging with WFMH, the board of WFSAD took into account the similarities between both organizations: that both organizations share a similar vision, mission, and most importantly values. The merger negotiations have shown us that we will make strong partners and that this will provide a strong basis on which to share knowledge and develop efficient programs.
The WFSAD has worked with families of those with serious mental illness and family organizations dedicated to this cause since 1982. We are very proud of what WFSAD and its members have been able to achieve over this time.
With the larger infrastructure of the WFMH, we hope to be able to further advance the cause of families and those who experience psychiatric disorders, through continuing to develop programs such as the Reason to Hope family education tool, the Families as Partners in Mental Health Care guidebook, and the Global Support and Advocacy Network.
A major vehicle for these programs will be the WFMH Center for Family and Consumer Advocacy and Support. This Center will represent consumer and family interests. We hope that as it develops it will become a powerful symbol to inspire caregivers and consumers all around the world with a renewed commitment.
Now is a very exciting time. We will put our doubled strength to work on the challenging family/ consumer issues in mental health and illness.
Please visit the WFMH Center for Family and Consumer Advocacy and Support regularly as our staff and volunteers develop this exciting new part of the WFMH website.
This site will remain active for the use of our members and the general public, particularly to serve Spanish and French speakers.
About Serious Mental Illness
Schizophrenia: Schizophrenia affects people from all walks of life, usually young people between the ages of 15 and 30. Not everyone will experience the same symptoms, but some symptoms of schizophrenia, such as hearing voices, are common to many. Schizophrenia alters the way people think and feel, so that perceptions may be changed and thinking can be disturbed. This is very disabling for them and very distressing for their families, who often become the primary caregivers.
With modern medical treatment, opportunities for rehabilitation, and the support of family and friends, schizophrenia need not be as feared as it was in the past.
Click here for more information on: Schizophrenia.
Depression: A depressive disorder can affect your whole self, from the way you eat and sleep to how you feel and think about yourself. Some of the main symptoms of depression are: depressed mood; diminished interest in life; insomnia; fatigue; weight loss/ gain; diminished concentration.
Depression can affect a person at any time in his life from adolescence or youth to advanced age. It may be of short duration, or continue for months or years, or it may appear episodically at different times during a person's life. Some people fully recover, while others may suffer throughout their lives.
Click here for more information on: Depression.
Bipolar Disorder: The disorder is one of severe mood changes from depression, excessively low mood to mania, excessively high mood. It cannot be compared to normal changes in mood experienced by most people. It can be very destructive, causing disruption in relationships, loss of work, financial difficulties (it is often associated by excessive spending). People may experience either mania or depression for many weeks or months before they change. In other cases, called rapid cycling, moods swing daily and are very difficult to deal with.
In some cases manic or depressive symptoms can be accompanied by psychotic symptoms.
Click here for more information on: Bipolar Disorder.
Stigma and Discrimination
Stigma and discrimination against people with schizophrenia and other serious mental illnesses was identified as the number one issue for families.
Stigma is based on ignorance and stereotyping , and leads to acts of discrimination. It effects every aspect of the lives of people with serious mental illness and their families.
Click here for more information on: Stigma and Discrimination.
How Families Can Help
The importance of family involvement in care has been well-documented (see Ian Falloon's bibliography of 22 studies, which all show the patient benefit), and includes (6)
- Decreased rates of hospitalization & relapse;
- Enhanced adherence to treatment choices;
- Increased rates of recovery;
- Decreased involvement with the criminal justice system; and
- Savings to the mental health system.
Families can help by learning about the illness, symptoms, and signs of relapse. Depending on the situation, you may be able to keep track of appointments, medications, side effects in a journal so you and your relative can look back and understand what works and what doesn't. Encourage participation in hobbies, support and social groups. But most of all, be supportive and let your relative know that you are there for them.
Support for Families
Family members caring for those with serious mental illness often find themselves becoming a nurse/counselor/advocate/crisis worker/home-care and income provider all rolled into one (5).
Families face:
1. Stigma, Isolation, Lack
of Emotional Support and Recognition
2. Lack of Information, Services and Policy
3. Health Decline
If you are a family member caring for someone with a mental illness, it is important to take care of yourself as well and to seek the support you need. This can be in the form of support groups for families or ensuring that you are able to participate in social activities and take time for yourself. Managing stress is challenging, but crucial for all families caring for someone will a mental illness.
"The road ahead is long. It is littered with myths, secrecy and shame. Rare is the family that will be free from an encounter with mental disorders or will not need assistance and care over a difficult period. Yet, we feign ignorance or actively ignore this fact."
-Dr. Gro Harlem Brundtland, Director-General of the World Health Organization in 2001
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